Over the past two weeks, Melissa, our Family & Provider Support Coordinator, has been on the move—sharing vital information about FOP with physicians across the country ✈️✨ After connecting with pediatric specialists at the American Academy of Pediatrics conference, Melissa wrapped up her outreach at the American Academy of Family Physicians’ Family Medicine Experience (FMX) in Anaheim, California 🌴 👣 From our new FOP awareness banner (featuring members of our amazing community!) to our medica
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Thembah lives with FOP in South Africa, and his L.I.F.E. Award provided a keyboard for him to pursue a career in music 🎶🎹 We love seeing the impact of the Harold and Elaine Kaplan Quality of L.I.F.E. Awards on our FOP community members 🤩 L.I.F.E. Award applications are accepted every January and July from individuals with a confirmed FOP diagnosis who have not yet used their $1,800 USD lifetime grant ❤️ Funds can be applied to home modifications or the purchase of adaptive equipment that make
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